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| Part I: INTRODUCTION TO ETHICS | |
| 1.Ethical Theory and Bioethics | |
| Fundamental Problems | |
| The Study of Morality | |
| Moral Dilemmas and Disagreements | |
| The Problem of Relativism | |
| Moral Justification | |
| Types of Ethical Theory | |
| Utilitarian Theories | |
| Kantian Theories | |
| Contemporary Challenges to Traditional Theories | |
| Virtue Ethics | |
| The Ethics of Care | |
| Casuistry | |
| Ethical Principles | |
| Respect for Autonomy | |
| Beneficence | |
| Justice | |
| Law and Policy | |
| Ethics and Public Affairs | |
| Morality and Law | |
| Legal and Moral Rights | |
| Law, Authority, And Autonomy | |
| Part II: JUSTICE AND AUTONOMY IN HEALTH CARE | |
| 2. Justice in Access to Health Care | |
| Introdcution | |
| Just Health Care and the Right to Health Care | |
| Norman Daniels, "Is There a Right to Health Care and, if so, What Does it Encompass?" Robert M | |
| Veatch, "Justice, the Basic Social Contract, and Health Care | |
| Allen E | |
| Buchanan, "The Right to a Decent Minimum of Health Care | |
| H | |
| Tristam Engelhardt, Jr | |
| "Rights to Health Care | |
| Managed Care and Access to Care | |
| Lawrence O | |
| Gostin, "Securing Health or Just Health Care?: The Effect of the Health Care System | |
| Madison Powers, "Managed Care: How Economic Incentive Reforms Went Wrong | |
| Allen Buchanan, "Managed Care: Rationing without Justice, But Not Unjustly | |
| Rationing | |
| Peter A | |
| Ubel and Susan Dorr Goold, "'Rationing' Health Care: Not All Definitions are Created Equal | |
| Norman Daniels, "Rationing Fairly: Programmatic Considerations | |
| Leonard Fleck, "Just Caring: Oregon, Health Care Rationing, and Informed Democratic Deliberation | |
| 3. Autonomy Rights and Medical Information | |
| Introduction | |
| The Confidentiality of Medical Information | |
| Mark Siegler, "Confidentiality in Medicine - A Decrepit Concept | |
| California Supreme Court, Tarasoff v | |
| Regents of the University of California | |
| Morton E | |
| Winston, "AIDS, Confidentiality, and the Right to Know | |
| Truth Telling and Disclosing Bad News | |
| David C | |
| Thomasma, "Telling the Truth to Patients: A Clinical Ethics Exploration | |
| Garry S | |
| Sigman, Jerome Kraut, and John La Puma, "Disclosure of a Diagnosis to Children and Adolescents When Parents Object | |
| Informed Consent | |
| United States Court of Appeals, District of Columbia Circuit, Cantebury v | |
| Spence | |
| Jay Katz, "Physicians and Patients: A History of Silence | |
| Ruth R | |
| Faden and Tom L | |
| Beauchamp, "The Concept of Informed Consent | |
| Robert J | |
| Levine, "Informed Consent: Some Challenges to the Universal Validity of the Western Model | |
| Refusal of Treatment | |
| California Court of Appeals, Second District, Bouvia v | |
| Superior Court | |
| United States Supreme Court, Cruzan v | |
| Director, Missouri Department of Health | |
| Advance Directives | |
| Linda Emmanuel, Marion Danis, Robert A | |
| Pearlman, and Peter A | |
| Singer, "Advance Care Planning as a Process: Structuring the Discussions in Practice | |
| Ben E | |
| Rich, "Advance Directives: The Next Generation | |
| Part III: LIFE AND DEATH | |
| 4. End-of-Life Decisionmaking | |
| Introduction | |
| The Right to Die | |
| F | |
| M | |
| Kamm, "A Right to Choose Death?" Leon R | |
| Kass, "Is There a Right to Die?" The Legal Background in the United States | |
| The Oregon Death With Dignity Act | |
| United States Supreme Court, Vacco v | |
| Quil andWashington v | |
| Glucksberg | |
| The Supreme Court of California, Wendland v | |
| Wendland | |
| The Moral Foundations of Public Policy on Physician-Assisted Death | |
| Henck Jochemsen and John Keown, "Voluntary Euthanasia under Control?: Further Empirical Evidence from the Netherlands | |
| Johannes J | |
| M | |
| van Delden, "Slippery Slopes in Flat Countries: A Response | |
| Palliation and Other Alternatives to Physician-Assisted Death | |
| Bernard Gert, Charles M | |
| Culver, and K | |
| Danner Clouser, "An Alternative to Physician-Assisted Suicide | |
| Timothy E | |
| Quill, Bernard Lo, and Dan W | |
| Brock, "Palliative Options of Last Resort | |
| 5. Abortion and Maternal-Fetal Relations | |
| Introduction | |
| The Problem Justifying Abortion | |
| Don Marquis, "Why Abortion is Immoral | |
| Judith Jarvis Thomson, "A Defense of Abortion | |
| Baruch Brody, "The Morality of Abortion | |
| Mary Anne Warren, "On the Moral and Legal Status of Abortion | |
| Legal Issues of Abortion | |
| United States Supreme Court, Roe v | |
| Wade | |
| United States Supreme Court, Planned Parenthood of Southeastern Pennsylvania v | |
| Robert P | |
| Casey, et al | |
| etc | |
| United States Court of Appeals, Eighth Circuit, Carhart v | |
| Stenberg | |
| Maternal-Fetal Relationships and Rights | |
| United States Supreme Court, Automobile Workers v | |
| Johnson Controls, Inc | |
| District of Columbia Court of Appeals, In Re A | |
| Alexander Capron, "Punishing Mothers | |
| Kenneth A | |
| DeVille and Loretta Kopelman, "Moral and Social Issues Regarding Pregnant Women Who Use and Abuse Drugs | |
| Part IV: BIOMEDICAL RESEARCH AND TECHNOLOGY | |
| 6. Research Involving Human and Animal Subjects | |
| Introduction | |
| Codes and Guidelines | |
| "The Nuremberg Code" (1947) | |
| World Medical Association, "Declaration of Helsinki" (2000) and "Note of Clarification" (2001) | |
| Council for International Organizations of Medical Sciences, in Collaboration with the World Health Organization, "International Ethical Guidelines for Biomedical Research Involving Human Subjects" (2002) | |
| Council for International Organizations of Medical Sciences, "International Guiding Principles for Biomedical Research Involving Animals" (1985) | |
| Ethical Issues in Human Research | |
| National Bioethics Advisory Commission, "Protecting Research Participants - A Time for Change" (2001) | |
| Ezekiel J | |
| Emanuel and Franklin G | |
| Miller, "The Ethics of Placebo-Controlled Trials - A Middle Ground" (2001) | |
| Harold T | |
| Shapiro and Eric M | |
| Meslin, "Ethical Issues in the Design and Conduct of Clinical Trials in Developing Countries" (2001) | |
| Solomon R | |
| Benatar, "Justice and Medical Research: A Global Perspective" (2001) | |
| Past Abuses of Human Research Subjects | |
| Gregory E | |
| Pence, "The Tuskegee Study" (1994) | |
| William J | |
| Clinton, "In Apology for the Study Done in Tuskegee" (1997) | |
| Sheldon H | |
| Harris, "Factories of Death" (1994) | |
| Advisory Committee on Human Radiation Experiments, "Final Report" (1995) | |
| Ethical Issues in Animal Research | |
| David DeGrazia, "The Ethics of Animal Research: What Are the Prospects for Agreement?" (1999) | |
| Baruch A | |
| Brody, "Defending Animal Research: An International Perspective" (2001) | |
| Andrew N | |
| Rowan, "Formulation of Ethical Standards for the Use of Animals in Medical Research" (1993) | |
| Richard Smith, "Animal Research: The Need for a Middle Ground" (2001) | |
| Suggested Readings | |
| 7. Eugenics and Human Genetics | |
| Introduction | |
| Eugenics Programs in the Twentieth Century | |
| Daniel J | |
| Kevles, "Eugenics and Human Rights" (1999) | |
| United States Supreme Court, Buck v | |
| Bell (1927) | |
| Stephen Jay Gould, "Carrie Buck's Daughter | |
| Jonathan Glover, "Eugenics: Some Lessons from the Nazi Experience" (1998) | |
| The Human Genome Project | |
| Francis S | |
| Collins and Victor A | |
| McKusick, "Implications of the Human Genome Project for Medical Science" (2001) | |
| James D | |
| Wilson, "Genes and Politics | |
| Allen Buchanan, et al | |
| "From Chance to Choice: Genetics and Justice" (2000) | |
| Svante Pääbo, "The Human Genome and Our View of Ourselves" (2001) | |
| Genetic Testing and Screening | |
| Patricia A | |
| Roche and George J | |
| Annas, "Protecting Genetic Privacy" (2001) | |
| Michael M | |
| Burgess, "Beyond Consent: Ethical and Social Issues in Genetic Testing" (2001) | |
| Lainie Friedman Ross and Margaret R | |
| Moon, "Ethical Issues in Genetic Testing of Children" (2000) | |
| Human Gene Transfer Research | |
| Ninkunj Somia and Inder Verma, "Gene Therapy: Trials and Tribulations" (edited) (2000) | |
| Theodore Friedmann, "Principles for Human Gene Therapy Studies" (2000) | |
| Julian Savulescu, "Harm, Ethics Committees and the Gene Therapy Death" (2001) | |
| Genetic Enhancement | |
| Jonathan Glover, "Questions about Some Uses of Genetic Engineering | |
| Jon W | |
| Gordon, "Genetic Enhancement in Humans" (1999) | |
| Erik Parens, "The Goodness of Fragility: On the Prospect of Genetic Technologies Aimed at the Enhancement of Human Capabilities | |
| Suggested Readings | |
| 8. Reproductive Technologies and Human Embryonic Stem Cell Research | |
| Introduction | |
| In Vitro Fertilization | |
| John A | |
| Robertson, "IVF, Infertility, and the Status of Embryos" (1994) | |
| Susan Sherwin, "Feminist Ethics and In Vitro Fertilization" (1987) | |
| ISLAT Working Group, "ART into Science: Regulation of Fertility Techniques" (1998) | |
| Reproductive Cloning | |
| Dan W | |
| Brock, "Cloning Human Beings: An Assessment of Ethical Issues Pro and Con" (1997) | |
| Leon Kass, "The Wisdom of Repugnance" (1997) | |
| National Bioethics Advisory Commission, "Cloning Human Beings" (1997) | |
| Ranaan Gillon, "Human Reproductive Cloning: A Look at the Arguments Against It and a Rejection of Most of Them" (1999) | |
| National Research Council, "Scientific and Medical Aspects of Human Reproductive Cloning" (2002) | |
| Human Embryonic Stem Cell Research | |
| National Bioethics Advisory Commission, "Ethical Issues in Human Stem Cell Research" (1999) | |
| Glenn McGee and Arthur L | |
| Caplan, "The Ethics and Politics of Small Sacrifices in Stem Cell Research" (1999) | |
| Gilbert Meilaender, "The Point of a Ban: Or, How to Think about Stem Cell Research" (2001) | |
| National Research Council and Institute of Medicine, "Stem Cells and the Future of Regenerative Medicine" (2001) | |
| National Research Council, "Using Nuclear Transplantation to Produce Embryonic Stem Cells" (2002) | |
| Suggested Readings | |
| Part V: PUBLIC HEALTH | |
| The Global AIDS Epidemic and the Threat of Bioterrorism | |
| Introduction | |
| General Issues | |
| Anthony S | |
| Fauci, "The AIDS Epidemic: Considerations for the 21st Century" (1999) | |
| United Nations Joint Programme on HIV/AIDS and World Health Organization, "AIDS Epidemic Update" (2001) | |
| Peter R | |
| Lamptey, "Reducing Heterosexual Transmissions of AIDS in Poor Countries" (2002) | |
| Lawrence O | |
| Gostin and David W | |
| Webber, "HIV Infection and AIDS in the Public Health and Health Care Systems" (1998) | |
| AIDS, Justice and Public Health | |
| Gavin Yamey and William W | |
| Rankin, "AIDS and Global Justice" (2002) | |
| Donald Berwick, "We All Have AIDS" (2001) | |
| Dorothy E | |
| Logie and Solomon R | |
| Benatar, "Africa in the 21st Century: Can Despair be Turned to Hope?" (1997) | |
| The Duty to Warn and the Duty Not to Harm | |
| Charles A | |
| Erin and John Harris, "Is There an Ethics of Heterosexual AIDS?" (1993) | |
| Rebecca Bennett, Heather Draper, and Lucy Frith, "Ignorance is Bliss?: HIV and Moral Duties and Legal Duties to Forewarn" (2000) | |
| Andrea Carlson Gielen, et al | |
| "Women Living with HIV: Disclosure, Violence and Social Support" (2000) | |
| Testing and Screening Programs | |
| Institute of Medicine, "Reducing the Odds: Preventing Perinatal Transmission of HIV in the United States" (1998) | |
| Bernard Lo, Leslie Wolf, and Sohini Sengupta, "Ethical Issues in Early Detection of HIV Infection to Reduce Vertical Transmission" (2000) | |
| Stephen F | |
| Morin, "Early Detection of HIV: Assessing the Legislative Context" (2000) | |
| AIDS Vaccine Trials | |
| Dale Guenter, Jose Esparza, and Ruth Macklin, "Ethical Issues in International HIV Vaccine Trials" (2000) | |
| Malegapuru William Makgoba, Nandipha Solomon, and Timothy John Paul Tucker, "The Search for an HIV Vaccine" (2002) | |
| The Threat of Bioterrorism | |
| Donald A | |
| Henderson, "The Looming Threat of Bioterrorism" (1999) | |
| Robert C | |
| Spencer and Nigel F | |
| Lightfoot, "Preparedness and Response to Bioterrorism" (2001) | |
| Joseph Barbera, et al | |
| "Large-Scale Quarantine Following Biological Terrorism in the United States: Scientific Examination, Logisitc and Legal Limits, and Possible Consequences" (2001) | |
| Lawrence O | |
| Gostin, "Law and Ethics in a Public Health Emergency" (2002) | |
| George J | |
| Annas, "Bioterrorism, Public Health, and Civil Liberties" (2002) | |
| Recommended Readings |