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36-Hour Day : A Family Guide to Caring for Persons with Alzheimer Disease, Related Dementing Illnesses, and Memory Loss in Later Life

by: Mace, Nancy L.; Rabins, Peter V.

36-Hour Day : A Family Guide to Caring for Persons with Alzheimer Disease, Related Dementing Illnesses, and Memory Loss in Later Life

by: Mace, Nancy L.; Rabins, Peter V.

ISBN 13:
9780446610414
ISBN 10:
0446610410
Edition: Revised
Format: Paperback
Copyright: 04/01/2001
Publisher: Grand Central Pub

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Summary

Updated with the newest information on Alzheimer's Disease and dementia, this bestselling book has remained the "bible" for families who are giving care toafflicted loved ones.

Foreword

xix

Preface

xxiii

Acknowledgments

xxv

Preface to the First Edition

xxix

Dementia

(16)

What Is Dementia?

(3)

The Person with a Dementing Illness

(3)

Where Do You Go from Here?

(4)

Getting Medical Help for the Impaired Person

(12)

The Evaluation of the Person with a Suspected Dementia

(5)

Finding Someone to Do an Evaluation

(2)

The Medical Treatment and Management of Dementia

(4)

The Physician

(1)

The Nurse

(1)

The Social Worker

(2)

Characteristic Problems of Dementia

(35)

The Brain, Behavior, and Personality: Why People with Dementia Do the Things They Do

(5)

Caregiving: Some General Suggestions

(4)

Memory Problems

(2)

Overreacting, or Catastrophic Reactions

(6)

Combativeness

(1)

Problems with Speech and Communication

(9)

Problems the Impaired Person Has in Making Himself Understood

(4)

Problems the Impaired Person Has in Understanding Others

(4)

Loss of Coordination

(4)

Loss of Sense of Time

(2)

Symptoms That Are Better Sometimes and Worse at Other Times

(2)

Problems in Independent Living

(20)

When a Person Must Give Up a Job

(1)

When a Person Can No Longer Manage Money

(2)

When a Person Can No Longer Drive Safely

(5)

When a Person Can No Longer Live Alone

(4)

When You Suspect that Someone Living Alone Is Getting Confused

(4)

What You Can Do

(1)

Moving to a New Residence

(5)

Problems Arising in Daily Care

(57)

Hazards to Watch For

(7)

In the House

(3)

Outdoors

(1)

In the Car

(1)

Smoking

(1)

Hunting

(1)

Highways and Parking Lots

(1)

Nutrition and Mealtimes

(13)

Meal Preparation

(1)

Problem Eating Behaviors

(1)

Mealtimes

(5)

Malnutrition

(1)

Weight Loss

(2)

Choking

101

(1)

When to Consider Tube Feeding

102

(2)

Exercise

104

(3)

Recreation

107

(4)

Meaningful Activity

110

(1)

Personal Hygiene

111

(10)

Bathing

113

(3)

Dressing

116

(1)

Grooming

117

(1)

Oral Hygiene

118

(2)

Bathroom Supplies

120

(1)

Incontinence (Wetting or Soiling)

121

(8)

Urinary Incontinence

121

(5)

Bowel Incontinence

126

(1)

Cleaning Up

126

(3)

Problems with Walking and Balance; Falling

129

(5)

Becoming Chairbound or Bedbound

131

(2)

Wheelchairs

133

(1)

Changes You Can Make at Home

134

(7)

Should Environments Be Cluttered or Bare?

138

(3)

Medical Problems

141

(29)

Pain

143

(1)

Falls and Injuries

144

(1)

Pressure Sores

144

(1)

Dehydration

145

(1)

Pneumonia

146

(1)

Constipation

146

(2)

Medications

148

(4)

Dental Problems

152

(1)

Vision Problems

153

(2)

Hearing Problems

155

(1)

Visiting the Doctor

156

(1)

If the III Person Must Enter the Hospital

157

(2)

Seizures, Fits, or Convulsions

159

(2)

Jerking Movements (Myoclonus)

161

(1)

The Death of the Impaired Person

162

(8)

The Cause of Death

162

(1)

Dying at Home

163

(1)

Hospice

164

(1)

Dying in the Hospital or Nursing Home

164

(1)

When Should Treatment End?

165

(1)

What Kind of Care Can Be Given at the End of Life?

166

(4)

Problems of Behavior

170

(41)

The Six R's of Behavior Management

171

(1)

Concealing Memory Loss

172

(2)

Wandering

174

(10)

Reasons Why People Wander

175

(2)

The Management of Wandering

177

(7)

Sleep Disturbances and Night Wandering

184

(4)

Worsening in the Evening

188

(2)

Losing, Hoarding, or Hiding Things

190

(1)

Rummaging in Drawers and Closets

191

(1)

Inappropriate Sexual Behavior

192

(3)

Repeating the Question

195

(1)

Repetitious Actions

196

(1)

Distractibility

197

(1)

Clinging or Persistently Following You Around

197

(2)

Complaints and Insults

199

(4)

Taking Things

203

(91)

Forgetting Telephone Calls

294

Demands

204

(3)

Stubbornness and Uncooperativeness

207

(1)

When the Sick Person Insults the Sitter

208

(2)

Using Medication to Manage Behavior

210

(1)

Problems of Mood

211

(22)

Depression

211

(2)

Complaints about Health

213

(1)

Suicide

213

(1)

Alcohol or Drug Abuse

214

(1)

Apathy and Listlessness

215

(1)

Remembering Feelings

216

(1)

Anger and Irritability

216

(2)

Anxiety, Nervousness, and Restlessness

218

(2)

False Ideas, Suspiciousness, Paranoia, and Hallucinations

220

(11)

Misinterpretation

221

(2)

Failure to Recognize People or Things (Agnosia)

223

(1)

``My Mother Is Coming for Me''

224

(1)

Suspiciousness

225

(3)

Hiding Things

228

(1)

Delusions and Hallucinations

229

(2)

Having Nothing to Do

231

(2)

Special Arrangements If You Become III

233

(5)

In the Event of Your Death

235

(3)

Getting Outside Help

238

(26)

Help from Friends and Neighbors

238

(2)

Finding Information and Services

240

(1)

Kinds of Services

240

(8)

Having Someone Come into Your Home

244

(1)

Adult Day Care

245

(1)

Day Hospitals

246

(1)

Short-Stay Residential Care

247

(1)

Planning in Advance for Home Care or Day Care

248

(1)

When the Confused Person Rejects the Care

248

(4)

Your Own Feelings about Getting Respite for Yourself

252

(2)

Locating Resources

254

(3)

Paying for Care

257

(3)

Should Respite Programs Mix People Who Have Different Problems?

260

(1)

Determining the Quality of Services

261

(1)

Research and Demonstration Programs

262

(2)

You and the Impaired Person as Parts of a Family

264

(27)

Changes in Roles

266

(6)

Understanding Family Conflicts

272

(3)

Division of Responsibility

273

(2)

Your Marriage

275

(1)

Coping with Role Changes and Family Conflict

276

(6)

A Family Conference

278

(4)

When You Live out of Town

282

(1)

When You Are Not the Primary Caregiver, What Can You Do to Help?

283

(2)

Caregiving and Your Job

285

(1)

Your Children

285

(6)

Teenagers

289

(2)

How Caring for an Impaired Person Affects You

291

(30)

Emotional Reactions

291

(18)

Anger

293

(4)

Embarrassment

297

(1)

Helplessness

298

(1)

Guilt

299

(3)

Laughter, Love, and Joy

302

(1)

Grief

303

(2)

Depression

305

(1)

Isolation and Feeling Alone

306

(1)

Worry

307

(1)

Being Hopeful and Being Realistic

307

(2)

Mistreating the Confused Person

309

(1)

Physical Reactions

310

(2)

Fatigue

310

(1)

Illness

311

(1)

Sexuality

312

(3)

If Your Spouse Is Impaired

312

(3)

If Your Impaired Parent Lives with You

315

(1)

The Future

315

(5)

You as a Spouse Alone

317

(3)

When the Person You Have Cared for Dies

320

(1)

Caring for Yourself

321

(19)

Take Time Out

322

(4)

Give Yourself a Present

324

(1)

Friends

324

(1)

Avoid Isolation

325

(1)

Find Additional Help If You Need It

326

(6)

Recognize the Warning Signs

327

(3)

Counseling

330

(2)

Joining with Other Families: The Alzheimer's Association

332

(4)

Support Groups

334

(1)

Excuses

335

(1)

Advocacy

336

(4)

For Children and Teenagers

340

(5)

Financial and Legal Issues

345

(14)

Your Financial Assessment

345

(6)

Potential Expenses

346

(1)

Potential Resources

347

(4)

Where to Look for the Forgetful Person's Resources

351

(3)

Legal Matters

354

(5)

Nursing Homes and Other Living Arrangements

359

(51)

General Rules for Evaluating a Care Facility

359

(2)

Moving with a Confused Person

361

(1)

Types of Living Arrangements

362

(4)

Nursing Homes and Assisted Living Facilities

366

(41)

Paying for Care

370

(1)

Payment Sources

371

(9)

Establishing the Need for Medical Care

380

(1)

The Mental Health Screening Requirement

381

(1)

Finding a Home or Other Facility

381

(12)

Nursing Home and Assisted Living Programs that Specialize in Dementia Care

393

(2)

Moving to a Nursing Home

395

(2)

Adjusting to a New Life

397

(1)

Visiting

397

(4)

Your Own Adjustment

401

(2)

When Problems Occur in the Nursing Home

403

(2)

Sexual Issues in Nursing Homes

405

(2)

The Department of Veterans Affairs (VA)

407

(1)

State Mental Hospitals

407

(3)

Brain Disorders and the Causes of Dementia

410

(14)

Dementia

410

(9)

Dementia Associated with Alcohol Abuse

413

(1)

Alzheimer Disease

413

(2)

Multi-Infarct or Vascular Dementia

415

(1)

Lewy Body Dementia

416

(1)

The Frontotemporal Dementias, Including Pick Disease

417

(1)

Depression

417

(1)

Binswanger Disease

418

(1)

AIDS

418

(1)

Other Brain Disorders

419

(5)

Delirium

420

(1)

Senility, Chronic Organic Brain Syndrome, Acute or Reversible Organic Brain Syndromes

421

(2)

Anoxia or Hypoxia

423

(1)

Research in Dementia

424

(19)

Understanding Research

425

(3)

Bogus Cures

427

(1)

Research in Multi-Infarct Dementia and Stroke

428

(1)

Research in Alzheimer Disease

429

(6)

Structural Changes in the Brain

429

(1)

Brain Cell Structure

429

(1)

Neurotransmitters

429

(1)

Abnormal Proteins

430

(2)

Transplants of Brain Tissue

432

(1)

Drug Studies

432

(1)

Metals

433

(1)

Viruses

433

(1)

Immunological Defects

434

(1)

Head Trauma

434

(1)

Epidemiology

435

(1)

Down Syndrome

435

(1)

Old Age

436

(1)

Heredity

436

(2)

Gender

438

(1)

Promising Clinical and Research Tools

439

(1)

Keeping Active

440

(1)

The Effect of Acute Illness on Dementia

441

(1)

Research into the Delivery of Services

441

(1)

Protective Factors

442

(1)

Appendix 1. Further Reading

443

(6)

Appendix 2. Organizations

449

(7)

Appendix 3. Locating Your State Office on Aging and State Nursing Home Ombudsperson

456

(8)

Appendix 4. Nursing Home Residents' Rights

464

(7)

Index

471

Amazon no longer offers textbook rentals. We do!

36-Hour Day : A Family Guide to Caring for Persons with Alzheimer Disease, Related Dementing Illnesses, and Memory Loss in Later Life

36-Hour Day : A Family Guide to Caring for Persons with Alzheimer Disease, Related Dementing Illnesses, and Memory Loss in Later Life

9780446610414

0446610410

Summary

Table of Contents

Supplemental Materials

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